I grew up in the generation with iPod's. So I'm wondering if I am now paying for it.
Tinnitus has disrupted my life significantly and impacted my sleep/focus two key things needed to do my job effectively as a a software engineer. I'm now on antidepressants and cannot go to sleep without a noise maker. I'm concerned about the future when/if I loose hearing in old age if I will be able to tolerate it.
Anyone else have this issue? Anyone know of any clinical trials that I could join?
I've realised the following about what triggers and helps me -
1. Exercise: Regular exercise helps. When I regularly play tennis, go to the gym, or do yoga, the tinnitus increases right after the exercise, but is much lower throughout the day.
2. Stress and a proper schedule: If I drink more, eat garbage, or work during odd hours, my tinnitus increases. Instead of feeling bad about it, I use it as an early feedback mechanism to help me diagnose when my life is not in the right direction.
3. Weather: Tinnitus increases in the winters.
My aunt told me that regular yoga helped her mitigate her tinnitus symptoms too.
I felt quite sad and depressed during my early months of tinnitus, but over time I've tried using it as a motivator. If a slight ringing in my ears makes me feel so depressed, there are other things that could happen that could completely destroy my life. So I should remember that life is short, use the time I have left wisely, and do things that I've been putting off.
I've also tried using it as a feedback loop. If the ringing increases, there might be something wrong with my diet, daily routine, or stress. So it helps me recognise unhealthy patterns earlier.
If at some future time an actually effective treatment, prosthesis, or medication is developed, it will hardly be possible to hide from the news. Until that point knowing about all the things that were tried and didn't work doesn't really help me.
Also, hopefully this might help someone: For playing my ambient sounds on loop, I use an old first gen Raspberry Pi with a set of USB powered speakers running mpg123 (a command line audio app) which I edited into the RPi's rc.local script (run on boot) and yt-dlp (YouTube download and transcoding).
There are literally tens of thousands of different audio ambience tracks on services like Spotify and YouTube of every possible description. It's astounding really. So occasionally I ssh in to the RPi, grab some track off of YouTube, rip it to mp3, and then play it for a while. Otherwise it plays the same heavy surf track I've been listening to for over a decade. I know every moment of that track and there's something weirdly comforting to that.
Right now I am listening to "Rain on Tent" and on my laptop is some sort of upbeat morning Jazz cafe thing which is probably not entirely man made.
I manage it with these earplugs:
https://www.amazon.com/gp/product/B0051U7W32
I sleep in them, mostly so noises like the furnace coming on or the cats getting rowdy outside my bedroom don't wake me up. But also wear them anytime the tinnitus is bothering me. Things like road noise while driving, fan noise, vacuum cleaners, etc seem to aggravate mine, and the earplugs generally help lower the high-frequency noise in our environment. I've gotten so used to them that sometimes I don't realize they're in my ears. For me, it seems the less noise I have to process, the less tinnitus bothers me. So I've never used things like noise generators to mask the high-pitched ringing.
I cut about 1/4" off the tip of these earplugs before using them. If I don't, they puff out in my ear and will make it sore if worn for long periods of time. I wash them with soap and water and use them for months at a time, so that one jar of plugs has lasted me almost 10 years.
What helped me -Sleeping with a fan / aircon / noise machine -Listening to music / coffee shop bg sounds during work -Not having many silent moments at home, having music on etc to distract myself
I always wear ear plugs at loud events like gigs etc, something I always should have done. You need to stop listening to it, to see if its gone or how high it is. Eventually your brain will zone it out.
also this is a crazy suggestion but moving to Asia also helps, there is always traffic, fans, aircons and beach sounds
Doing all of the followings has helped me greatly:
* Brownian noise generator, as needed
* cold compress on forehead as needed
* avoidance of large number of Rx (ototoxic)
* no tobacco-derivatives
* no cannibus (did not discern between THC or CBD (sp?)
* no overeating
All those are very noticeable in form of tinnitus when violated. But it took a very long time to discover what works and what doesn't. Self-awareness of all those stimulus is required to identify and it gets easier once self-trained to recognize association between your own action and tinnitus. Most are identifiable within 30 minutes, some Rx takes 5-7 days to notice).
At age of 48, I lost 85% of hearing within 30 minutes of taking one dosage of Zyban (Wellbutrin-class) Rx. Filed a report with FDA. Warning sheet made no mention of this.
Cochlear implant helps a lot with reducing (built-in Brownian noise generator) as well as restoring my hearing to almost better than avg. human. But it took away my natural sound spectrum (think 32 distinctively-sieved equalizer bars, or crescendo sounds jumpy) in favor of huge dB increase.
Edit: am sedentary, my BMI is 29. Relatively stress-free (might explains less need for exercise there but do do notice Yoga helps a little).
Listened to music that has varied rhythms (Jazz, classical, low-bass beats) but that music selection has noticeably becomes no longer the requirement for tinnitus reduction once my list above were maintained. (Derivative of Brownian noise, panacea?). I now enjoy nearly all music variety (metal opera, anyone?)
aspirin is noticeable but preferred over Tylenol (liver protection). And a light social drinker.
Tinnitus is largely gone but every now and then some new act such as eating enjoyable jalapeño would bring it back with a vengeance or a nasty bout of Staph-B (high temperature).
I only wished I was told of all this ahead of time because life quality has improved greatly overall with not just better in terms of avoiding tinnitus-induced depression but oral communication has improved.
Ask your medical professional to add to your medical record the anti-Ototoxic list as part of your known allergies to avoid hearing loss (as well as tinnitus):
https://www.soundrelief.com/list-of-ototoxic-medications/amp...
Good luck with your self-awareness training.
The theory is that the neurons handling neck pain are located really closely to the auditory neurons, so there might be some interference. I'm not sure how proven that theory is though. I guess that might also be the reason why some people think stress causes tinnitus - stress also (sometimes) causes tensions, so it might be an indirect causation. Personally, I never noticed any direct correlation between stress level and tinnitus. I tried taking a time out - didn't improve anything. It also did not get worse in stressful times as long as I took care of the neck tensions.
It took me quite a while to figure that out because I have a spectacularly bad body sensation. My girlfriend used to tell me how tens I was and I never noticed by myself. Once I took care of that the headaches that had also been plaguing me, vanished as well. So in hindsight I feel a bit stupid for not figuring that out sooner. :)
I've had tinnitus for as long as I can remember, but I typically don't notice it despite it being fairly loud.
Until, that is, I read the word "tinnitus"...
I thought about suicide almost daily after the first week. I couldn’t understand how one could live with this. As anyone who has it knows, it’s life altering. But a lot can change. I “habituated” to it and I think it got a bit better. Today I have to stop and listen for it to notice it. It’s also forced me to address other things: stress, sleep, diet. They all seem to play a factor.
Also important to note that current studies on this are also not targeted at tinnitus, and depending on the cause of one's tinnitus, this type of therapy may very well do nothing to help. Something to maybe keep an eye on though, and maybe even talk to your medical professional should they conduct any additional trials.
[0] https://news.mit.edu/2022/frequency-therapeutics-hearing-reg...
[1] https://clinicaltrials.gov/ct2/show/NCT05086276
[2] https://clinicaltrials.gov/ct2/results?cond=&term=FX-322&cnt...
Anyway, it sucks. You don't really have any choice but to get used to it and your brain should do that at some point. My recommendation is to accept it and stop trying to get rid of it or trying to find some hack to help manage it. Once you've gotten used to it and only suffer from periodic episodes, then start trying various tricks to push it back out of mind.
I had it since I was early 20s; it didn't get worse, but also not better. It's very annoying when counting on me hearing something in meetings (irl or via zoom/phone etc); there cannot be any background noise or I hear literally nothing but static. That's why I generally just tell people to chat/email; I prefer that anyway, but it's also a necessity when there is background noise (and let's face it, there is always that one person who has produces a strange amount of noise on Zoom), or has a broken headphone so it crackles through everything they say. Or they use that black conference 'thing' big companies have in the middle of the table which has the worst sound quality ever if you don't bend into it and shout.
Hope they can fix it for you! It sometimes makes me lonely in busy bars as I cannot understand what anyone is saying unless they scream their heads off into/close to my ear. Now that i'm a bit older, more people have hearing issues and are more sociable in helping out instead of thinking i'm just some introvert weirdo 'who does not want to call but only chat'.
COVID? Falling asleep to loud headphones? Rock concerts? Do you blast music while you code? Change in ambient room noise?
How old are you?
Me:
I noticed an increase in volume of mine at the start of the year.
Was after a clubbing night with insanely loud music. From which I caught my first COVID case too.
I was guilty of blasting music while coding at night. Especially when having a few beers, I would increase the volume without noticing it.
Have also fallen asleep with headphones blasting music.
Mine is white noise and a minor electrical kind of thing. I completely understand how it can disrupt your life.
I'm glad it happened to me because now I take preventative measures when around loud music or at concerts. Otherwise I would never have known. When people think about damaging their hearing, they think its like a gradual thing they will notice, and will just mean they can't hear some frequencies. But I don't think people expect tinnitus.
People don't know. There needs to be more awareness. Rock concerts are way too loud without ear plugs.
For me, I habituated, and don't notice it anymore. It really is a psychological issue. Much with anything in life, the answer is to simply not think about it. And appreciate that it was always going to happen so there is no need for regrets.
The kind of tinnitus I have is what I can only describe as the sound a plane makes mid-flight (at least the one you can hear from inside).
It doesn't really interfere with my life, but it can become annoying if I suddenly become aware of it.
My hearing is no worse. It is actually very sensitive to noise. I need to use earplugs to be able to sleep. I am poor sleeper unfortunately, it could be the reason.
I got used to tinnitus. I think mindfulness meditation before bed could benefit you. I don't think there is much you can do, especially trying to fight it or think about it.
The Neuromodulator from mynoise[1] sometimes alleviates it for a period of time, especially mixed with some coloured noises.
Other than that, there's apparently research indicating that notched audio (music with your tinnitus frequency removed) may help train your brain, e.g. [2].
Annoyingly mine seems to be a broad spectrum and/or my ability to recognise pitch is abysmal which means I've not been able to test this myself - but there's apps to do it for you.
[1] https://mynoise.net/NoiseMachines/neuromodulationTonesGenera...
Like other people here mentioned, I found that the best way to deal with it, when it does bother me, is to have another background sound that stops you from focusing on it.
I'd recommend trying to "listen" to Sleep, an 8.5 hour album by Max Richter written to be played while you sleep, although I also sometimes play it in the background during the day since it helps me switch off and focus on what I'm working on.
I wear ear pods frequent while I work. They came to my door and asked to borrow some money. I was on hold with a vendor, so I ran to my wallet, gave them the money and pointed at my ear, saying I was on the phone. I closed the door and turned back to my office—then BAM. A high pitch whine in my ear. I pulled the pod out, and sure nuf, it was in my head.
I just decided to ignore it, and it ‘went away’.
Only reason I even gave it any thought was because a colleague of mine was said to have it, Mr. Rick Tharp. What a talent. He committed suicide twenty years ago. Supposedly because of his tennitus.
In my experience with it, it goes away.
Because of my heartbreak over loosing my friend, I wonder if tennitus is code for depression.
I find very helpful using my phone to put some background noise (raining. noise from mynoise.net). Some times, I use a Bluetooth sleeping ear plugs.
Actually I'm taking some (receted by my doctor) pills that looks that it's helping a bit, and doing some exercises to teach to my brain to ignore it.
Tinnitus is very annoying and eats away energy it requires to pay extra attention to your health and mood and your attention. You might ALSO be very stressed and burnout and blame everything on tinnitus, eliminate other issues and stress factors
Since you do not seem to have a clear loud noise event in the days prior to the tinnitus look for other health issues like a old root canal treatment https://youtu.be/YK8RD3gzmwg
I had to change my life to avoid all loud noises and events it's HARD but you get used to the limitations.
Its strange because I don't feel like I abused my ears relative to my peers: didn't use alcohol until I was in my twenties, hardly ever went to loud music shows. I did use my ipod growing up a lot as well but I was usually pretty careful about my ears and used lower volumes.
More than likely for me I think it was a combination of possibly motorcycle riding (despite wearing hearing protection I'd still sometimes come away from a ride with some ringing in my ears), and one incidence at a shooting range where my earmuffs weren't quite on, and - possibly most of all - I'm pretty sure my snoring contributed to it becoming permanent.
There's an electrostimulation trial I believe. Non-nvasive
https://www.lenire.com/what-is-lenire/#:~:text=Lenire%20is%2....
I recommend white/brown noise, natural sounds and CBT. Mine is a constant companion, made worse by being reminded about it gods curse you!
Thankfully that passed and I can hear but the ensemble of differently pitched constant ringing ... can genuinely be a nightmare sometimes. As someone else stated, I cannot hear other people speak when there is background noise. I don't go to bars, concerts, or movies anymore (for almost two decades now). It sucks.
Even a small amount of dirt cheap taurine supplementation completely cures it https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2997922/. It also cures my anxiety and eye floaters. I wonder what's going on biochemically for it to have such a strong effect on me, or perhaps what nutrient is rate-limiting my endogenous taurine creation, but I'm happy enough having discovered a cure.
I've gotten used to it now to the point where unless it's really strong I can more or less ignore it.
I can understand that some people find it distressing, but I've made my peace with it, it's now part of me.
Related: Nick Cave (Australian musician) and his own issues: https://www.theredhandfiles.com/do-you-have-tinnitus/
I didnt find that background sound helped me. I also had no hearing loss but got exposed to stressing noises during construction projects I do for fun (now I am always careful).
What worked for me when programming or thinking intensively is getting used to headphones and background music always running, thus once trained to think clearly with noise then the job becomes more bearable.
https://www.irishtimes.com/news/science/irish-made-tinnitus-...
Earlier this year I came across this study with very promising results:
Sirh, Soo Ji, So Woon Sirh, Hah Yong Mun, and Heon Man Sirh. 2022. “Integrative Treatment for Tinnitus Combining Repeated Facial and Auriculotemporal Nerve Blocks With Stimulation of Auditory and Non-Auditory Nerves.” Frontiers in Neuroscience 16. https://www.frontiersin.org/article/10.3389/fnins.2022.75857....
They found an acupuncture-based treatment which eliminates or significantly reduces tinnitus in more than 87% of cases (n=55). I'm hoping to be able to get this at some point. The study is out of South Korea though; it might be a while before the technique is available in the west.
I’ve always had it bad because of my career as a musician / producer / audio engineer.
If I do happen to become aware of it for whatever reason, it rarely takes long for for it to drift into the background again.
It was a side effect of an anti-anxiety drug which I no longer use.
Here are a few tips I learned to cope with it better:
- trust you will get over it. This part is the hardest at the beginning because we can't imagine our life without silence. We grieve for a loss, and we lost silence.
- stay away from the tinnitus forums. They can be very informative but are full of very negative people that will trigger your symptoms. You only see the people that first posted but never returned to inform they are feeling better. You will only read about the most terrifying period after the first symptom, but not about the impressive ability of our brains to adapt to new stimuli.
- all the tips I read here are valid and I tried them myself. I sticked with exercise the most which definitely helped, probably more with my stress levels and anxiety than with the tinnitus, but through controlling my mind I can manage it better.
- I have not yet reached the point where I don't notice it. I know it's still there but my brain now knows it's not a menace anymore and doesn't trigger my fight or flight response. You will reach this point too.
- I suffer from anxiety too, which at the beginning made everything worse. Tinnitus forced me to learn to control my mind better and ironically I can now control my anxiety better as well.
I wrote a post with more detail about my experience here [1]. Also, feel free to reach out if you have more private questions. My DMs on Twitter are open.
Hangovers and illness make it worse.
Only downside is they're not great for music (bass notes get muddled)
Suddenly about 7 years ago when going to bed, it turned into that high pitch ringing 24/7 like after a concert, and caused me to have severe anxiety, panic attacks depression and suicidal thoughts for weeks. When I began losing sleep, it got worse. I would wonder around during the day trying to piece together my brain and try to get back to "normal thinking" again. Eventually it moved to both ears and louder in the left. The only thing I could think of a cause was slipping on a patch of ice and I slammed the back of my head really hard into the ground.
I went to hearing specialists and there was minimal hearing loss. Then I read an article about a researcher who suffered from tinnitus, and at some point (unrelated) he had a mild stroke and when he recovered, miraculously his tinnitus completely disappeared. Based on this he began working on a theory that it's neurological in nature and nothing to do with hearing loss. He also subscribed to the idea that stress plays a part.
I've tried acupuncture and it sort of dulled it for a few days but it comes roaring back. I've done CBD and it really helped dull it, and CBD lowers your anxiety and helps you sleep better, which could be the culprit.
Also I haven't had covid, but after I took the vaccine, it exasperated my tinnitus for the last year or so and it's worse than I had it before. Lucky by now i trained myself not to panic anymore and my concentration is almost back to normal. Cannot sleep without a noise machine though. And never taking that shot again.
I'm also wondering with the advent of every person on the planet hunched over their computers, then hunched over their phones if compressing the back of the neck is a culprit. I've also read a few articles about tinnitus increasing since the rollout of 5G.
The doctor made blood tests, blood pressure, and a few other things, and found nothing wrong.
Doctor told me to go to ENT specialist. The specialist tested my hearing, and examined my ears and nose and throat (he only examined my ears/nose/throat at my insistence), and found nothing wrong.
Because I also seemed to have a vision problem, I also went to optometrist, and they made vision test, eye pressure test, and visual field test; the only thing they found was blepharitis.
(At least, I did not have to pay for it.)
There may be side-effects of COVID-19 vaccine (which may have a long enough delay before it occurs, that it was not known at first), and I don't know if that is causing me to have tinnitus and headaches. Maybe it is because I have had too many booster shots of COVID-19 vaccine, so maybe it is overdose.
I will also read the other comments here.
Have had it since I can remember, though two events have exhacerbated it a little: (1) one day at a metal concert I was playing drums and a big amplifier banged all out of a sudden while I was near it; and (2) the pandemic, not sure if when I had covid or the moderna/astra zeneca vaccines (had the AZ shot and got covid syntomps just a few days later).
Had it in both ears but the right one is more sensible. It started back in 2020, then it took almost a year to come down. It came right after stopping Bupropion, where it seems I had a sort of sudden but delayed allergic reaction. I'm already sensible to dust mites and certain detergents, so this compounded a lot. Standard hearing test in the clinic days after the event showed no hearing loss.
What helped:
- The biggest one: a course of corticorsteroids (betamethasone) and chlorphenamine. In a week the tinnitus was gone, but it came back midly after this, which I solved with the next tips. BTW some people need strong steroid injections in their inner ear to keep it at bay! Fortunately this was not my case.
- Check your environment for triggers such as allergens, they worsen the drainage of water in the eustachian tubes, which you may feel as some water clogging your inner ear. I changed the laundry detergent, washed even the curtains with the new one too, put a HEPA filter running during the day. Wash your nose with a nasal rinse like Neilmed.
- Do you sleep on your right side? Try sleeping on the other one and see if you wake up with tinnitus. See if sleeping with nothing touching your ears makes you wake up better on the sensible side
- Reduce your headphones usage. Change the pads or switch pairs if the are the big ones, they get disgusting. Try other eartips if in-ear, keep them clean and moisture free. Lower the volume and take some time off them.
- White noise and modulation helps. This app is amazing and free: https://tinnitusplay.com/ - there's also this artist called "Tinnitus Works" in Spotify which I know from his collab in another app, MyNoise. Nice stuff to mask the sound. The masking actually helps retraining your brain a bit to tone down the noise. Do NOT point loud noises even if 'white' directly to you, like a fan or portable aircon, this actually makes it worse.
- Less caffeine. Less stimulants. Check your blood pressure.
- Check for a TMJ disorder. Stay mindful of this, maybe use a nightguard, muscle relaxant + benzo course if needed. Same for the neck. Added face muscle stress is a known tinnitus trigger.
- I brush my teeth religiously, but had frequent tonsil stones. Removed the tonsils this year, it also contributed to less tinnitus frequency. The explanation seems to be that there's less pressure around this area.
- Sertraline, an SSRI did help with the catastrophic thoughts when I had tinnitus bouts, didn't have such a fatal outlook on my future which in turn reduced my attention to it. Anxiety and stress are also triggers, in my case probably because I started to stress my face muscles with the worry, but in some people it's purely psychogenic. All in all, this stuff helped, and 9 months was enough.
- Don't hang out on tinnitus forums. Yes, probably too late, I spent hours there too checking the Bupropion connection which is a saga on its own.
Now I only get a tinnitus episode like once a month, but even then it's very mild, almost unnoticeable and more likely because I screwed up, like listening to loud music for hours.
Hope this helps a bit, best of luck! Don't give up!
"I reject that"
With "that" referring to the tinnitus.