Everytime she gets a high temp we have to test the urine for possible infections which is quite stressful.
She is having a DMSA scan that will confirm whether she has any scars on her kidney and then the following steps. At the moment we think she will have to have a ureteric reimplantation procedure which should reduce the reflux and protect the kidney. We hope this intervention will prevent any further damage and requiring dialysis or transplant (at least in the short-term).
It’s been a rollercoaster year and definitely used up a lot of my time and mental capacity. By nature I analyse different possible outcomes and try to prepare for it.
Has had similar experience? Other any words of wisdom or support?
One word of support: it has been my experience that kids are incredibly resilient. They 'bounce back' so much easier from serious and/or life-changing events than adults can. From what I've read about VUR there's a pretty good chance things will be a lot, lot better in 1 to 1,5 year for you all. Which brings me to my advice: despite the hardship, try to enjoy each other. You want to remember her first steps, words, teething, not the 100s hospital visits.
Stay strong!